Stupid Hoops

Jan 17, 2012 | All About Kennedy, All of Us, Crap, Special Needs, SSI

[flickr id=”5888961016″ thumbnail=”small” overlay=”true” size=”small” group=”” align=”left”]Four years ago we jumped through hoop after hoop.  We went to all of the exams, evaluations and tests needed for Angel to get qualified for SSI.

We were denied.

It took getting a disability lawyer to send in the paperwork for them to say yes.

Three years since our official qualification (thanks to the lawyer & the lovely fee they took out).

Now we are up for review.

For CF.

CF is not currently a disease that gets BETTER.

So we jump through the hoops again.

Pray that this time we aren’t denied again and are forced to go back to the lawyer to push the government back into reinstating what we’ve been qualified for for years.

It’s not like we’re trying to bilk them.  If we were we’d reapply for Riley. We’d apply for Brandon.  I’d work if I could so we didn’t need the SSI, but as we so recently realized that’s not a possibility if we’re to keep Angel on the insurance we so desperately need to keep.

I’m tired of jumping through senseless hoops.

Angel has CF.  What is the purpose of a Speech evaluation and a psychological exam? They have no bearing on her disease at all. None.

Stupid hoops.

Sarah

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