In the land of skinny genes, cystic fibrosis and oral aversions – we’ve got three kids rocking the low end of the growth chart. The words “Failure to Thrive” are bandied about on a regular basis and we are constantly checking little one’s diets to make sure they aren’t just getting calories, but healthy fats and plenty of vitamins and minerals too. The universal consensus for adding all of these things to help my kids grow & gain weight like they should? Doctors across the board have pushed us to full-fat Vitamin D milk. It’s all we’ve got in the fridge, and we go through 3-4 gallons a week between the kids and hubby. Before this FTT world hit my life I knew so very little about milk because I wasn’t allowed to touch the stuff (still can’t) due to an allergy (allergy, not intolerance). These days I’m learning a lot about milk beyond my family’s obsession (seriously, the husband can’t stop drinking it)…because I like to know about what goes into my family’s bodies – especially if it’s meant to promote their health. One thing that I love learning is how drinking milk is likely to help my own state and community. After all, Indiana is home to over 1200 dairy farms – 97% of which are family owned (and I’ve met some of those families). I was also surprised (and happy) to learn that most milk travels less than 100 miles from the farm to the grocery store. Of course, the biggest thing I made sure to learn about and know really well is that both plain and flavored milk contain nine essential nutrients, including calcium, potassium, phosphorous, protein, riboflavin, niacin and vitamins A, D and B12. Considering my kids needs, this is of utmost importance. It means that they’re getting vitamins and nutrients that either they refuse to eat, or that their bodies are leeching from them. And the only factor that matters to me, personally? Indiana – well, it ranks second in the nation for ice cream production. Because, I can only tolerate 1 serving of dairy a day…and you better believe it’s in the form of ice cream. *~* *Disclaimer: This post was sponsored by Indiana Dairy. This means I was paid for it, however all opinions are mine and true based on my own experience. You can’t pay me to lie about my family’s health…it’s too important to us all. Read more »
So X-ray might not be original, but I don’t care. Some days I wonder how it is that Kennedy doesn’t glow. I know the exposure levels are ‘minimal’. I remember the lectures. I remember the exposure tags when I worked at the vet’s office years ago. But Kennedy has had so many x-rays in her short 7 year life. They started around the time she was a year old. Some X-rays were because of her lungs, and her eventual diagnosis of CF. Others were for her hypotonia and the possibility of one leg being shorter than the other. Or her tibial torsion. And let’s not forget the reflux…oh, and the dysphagia where she had painful swallowing (which we eventually learned was from her inability to chew properly)…which meant about 5 times drinking and eating barium-laced substances and eating in front of a fluoroscope. She has spent more time in front of X-rays, CT-scans, fluoroscope’s in her 7 years than I have in my entire life. I’m seriously surprised she doesn’t glow. *~*~* The A-Z Challenge has over 1900 participants, all blogging from A to Z this month. Check them out and see if you can’t find a few new favorites!! Read more »
by Sarah CassMulti-published author. Mom of 3 special needs kids. Wife to 1 good man.
Redefining Perfect every day.
[flickr id=”8579444004″ thumbnail=”medium” overlay=”true” size=”medium” group=”” align=”left”]Last week Kennedy got it. That nasty bug that spiked her fever and gave her some time over a bucket, and then in the bathroom. It lasted about 4 days, during which she was mostly “okay”…able to eat crackers and keep down Gatorade. She went back to school on Tuesday, and no one else showed signs of sickness. I thought for certain we’d avoided the curse of the “traveling” virus that would go from family to family. Then, first thing yesterday. 6:30AM in the morning. It struck Molly. Hard. So much harder than it hit Kennedy. For over 12 hours she couldn’t keep anything down. Nothing. Not even sips of fluid. By about 7PM I was really worried. I checked her weight. Molly is about 50″ tall and is about 48lbs – already severely skinny from her FTT. At 7PM last night she weighed a measly 42.5 lbs. Dark sunken eyes, bad color…she almost looked like a skeleton. She could walk to the bathroom, but barely. She asked for help getting back in bed. Not sure of the next step I called a local 24hr nurse service and they confirmed my worries and we headed to the ER. After an hours weight in a packed ER we finally got a room (the room reserved for psych cases that had no amenities like TV or phone, and whose chairs were weighted down and almost impossible to move.). A lovely doctor stopped in the room before we even had her on the bed. Talked with us for a few seconds and ordered an IV drip and Zofran. The IV tech was in the room about 1 minute later. It took a little work to find a vein, but find one they did. Molly? Took her first IV like a champ. There was a little whimpering, of course, but over all she was amazing. A couple hours later, our Molly was back. Sparkling personality and all. Amazing what anti-nausea meds and a liter of fluids can do for a girl. Read more »