Not An Acceptable Excuse

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The teen was in the hospital recently. A brief (in our book) stay at the hospital kept him out of school for approximately a week. That was, unbelievably in some ways, almost 2 months ago. Since then his struggle to get back into his previous stellar grades has been immense. Whether a genuine struggled to get “Back on the horse” or just general rebellion the grades have remained low, assignments unfinished, and general malaise has centered around school. I’m sort of ashamed to admit I broke out the story. The age-old old-farts beginning sentence of “When I was your age”. Because I once had an 8 week bout of  mono. Out of school for 8 weeks and my grades were BETTER than they’d ever been with me in school. So I broke out that story. And ended it with the general rule of thumb in this house. We don’t let our labels define us. We don’t let them lead our lives. No. Illness isn’t an excuse. It never will be. So buck up. Suck it up. Do your homework. And don’t let CF or hospital stays win. Read more »

Medical Rebellion – Not a Good Plan…

Teenagers are expected to rebel. When they don’t you worry.  I wasn’t huge on rebellion, but I found my own way to rebel – by ignoring my scholastic capabilities. I never expected to be faced with a whole different sort of rebellion in my kids. Medical rebellion. It’s a dangerous game. The “I feel fine, so I don’t need to maintain” game. Now we have the new, added complexity of a compression vest. Something the teen does not want to do. Already he doesn’t do the things he doesn’t mind, and that only take a few minutes. Maintaining seems like such a hassle when you’re fine. Especially to a teenager. Even a teenager that dreams of being a doctor. Of all the things in my life that cause me stress and worry. Medical rebellion resides at the top of the list. Couldn’t he just give himself a mohawk and wear black and be all emo? That I could handle. I lived through that as a teen w/ best friends that weren’t…preppy…at all. I could handle emo. This medical rebellion crap? It sucks. Read more »

by Sarah Cass

Multi-published author. Mom of 3 special needs kids. Wife to 1 good man.
Redefining Perfect every day.

The Ups and Downs of the Teaching Hospital

The hospital the kids go to for their CF is a teaching hospital. It always has been. There have been many times we’ve gone to clinic and met new residents or fellows that were learning the craft from our top-notch pulmonologist. Some don’t stick around for a while, others are around for at least a year. The changing faces can get confusing when you’re in a long-term treatment plan like we are (or are terrible with names like I am). When you’re in the hospital there are some definite positives – and definite negatives. Positive – you have a team of doctors working your case. You know you’re getting the best care and a variety of input on your treatment. Negative – you have a team of doctors working your case. Every morning each member of that team comes in to check breath sounds. Not all together to get it done once…nope, one by one over the course of an hour. Positive – There are more nurses and therapists working your treatments and procedures. Negative – sometimes the room is overcrowded with people each dedicated to your care. This hospital is the best place for care. I know the people care about my child and making him healthy. I know that there are many people working his case. But it’s still overwhelming and frightening. Read more »