The things we take for granted in our lives is amazing. We forget to stop and see the small miracles that occur every day, we just look for the big ones. I’m guilty of that when it comes to Riley. I thought she would grow and advance just like every other child. I didn’t want for her to have the problems I had to go through.
We went to the geneticist for over a year before we got a diagnosis. He wanted to observe her and watch how she grew before he said anything definitive.
After so many visits he was finally ready to tell us. The diagnosis was autism, specifically pervasive developmental disorder (PDD-NOS). My wife and I were stunned. It didn’t change how much we loved her, looked at her, or treated her – but I felt responsible. I was the one with all the problems growing up, and the lingering ones as an adult. My wife had a typical childhood, no major problems to speak of. Her first child was neurotypical. No, if Riley was ill, it was because of me and my blasted genetics.
Riley was still not talking, or smiling much. But she was playing “outside” of herself. Any situation where a lot of people were involved made her extremely uncomfortable, often resulting in a “meltdown” as we called them. She did not like for anyone to initiate touching or hold her unless it was herself. We saw a little girl locked inside herself, and we had to find the keys.
As Molly grew, we were enrolled in an assistance program that helped us find and meet her special needs. She met with various therapists each week to help her reach goals that were set forth to bring her development up to speed. She also was able to attend a special needs pre-pre-school , which she started out very withdrawn, but ended up comfortable and playing/learning/chatting with the other kids and teachers. My Riley was coming around, and I couldn’t have been prouder.
Riley began to talk, she had been saying some words, but now she was really talking. It was very difficult to understand her sometimes, at least for me. My wife spent all day with her and it was easier for her to pick up Riley’s speech. But she was improving. Her weight was always on the low side, but her height was average to tall. Her was growing, and it was long platinum blonde with curls at the end. Her hair was very fine, but it was healthy. Her appetite was increasing, but there were certain things she would not touch, probably due to texture or feel. She would give quick hugs, and sometimes we could kiss her. She was improving all the time, making big and small leaps in progress.
Today Riley is a little personality. She is still withdrawn and still has her “quirks” – but daily she reminds us of how far she’s come – and how much farther she is destined to go. I still struggle with what I’ve done right, or wrong – and with my own self-blame…but nothing cheers me like a hug and a kiss from my own mini-me. My Alligator. My Riley.
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I apologize for the delay in the latest installment from Archie!! I kept forgetting to edit it. This was the final installment in the ‘Real Men Don’t Cry’ Portion. I’m hoping to keep nudging the hubs to make posts on a variety of subjects – because I know he has a lot more to say! So Fatherhood Fridays are far from over!!
Thanks Again! There is no greater love than the love of a child! Bless your family!
What a blessing she is, and so are the both of you as her parents.
.-= Momisodes´s last blog ..Signs of a realist =-.