Losing what she doesn’t have…

Jan 18, 2011 | All About Molly, Autism, Failure to Thrive (FTT)

Riley is almost six years old.

At last check, she weighed a tiny little 37 pounds to her almost 4′ frame.  Which puts her BMI once again well below the growth chart.

Then…

She stopped eating.

We don’t know why.

Or how to stop it.

Her beautiful long platinum locks got thinner and thinner.  Weak. Stringy.

Her already skinny frame is getting skinnier.

Legs long enough to fit into size 6.

Waist tiny enough to fit into 4T’s.

She won’t eat.

Unless it’s pancakes.

Mac & Cheese.

Hot Dogs.

It has gotten to the point where a peanut butter & jelly sandwich that has been asked for is snubbed.

Food.

Unappealing.

Whether it’s the texture.

Or the taste.

We’ll be spending the money for an appointment with the ped.

We’re reaching alarming levels.

Her autism is rearing its head more, her behavior unpredictable.

I’ve cut her hair in an attempt to make it appear thicker.  It’s cute, but I miss the beautiful long locks.

I’ve made allowances and fed her outside of what we eat (a habit I’m sickened to start…the rule has ALWAYS been eat what’s in front of you).  We’ve been giving her boxes of her sister’s Boost to make sure she gets her vitamins, minerals, and extra calories.

We’re worried about what this is going to mean for her in the near future.

But she can’t go on like this.

Neither can we.

Sarah

2 Comments

  1. Tara R.

    I know this must be scary. Sometimes it’s not a matter of ‘they’ll eat when they’re hungry.’ I heard that a lot. I hope you can get some answers from her ped.

    Reply
  2. Rachael

    Sarah, I totally just want to reach out and give you a big hug. So many struggles right now. I hope things start to look up soon.

    Reply

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