Today we met with the genetics counselor.

We left with nothing.

Nothing new.

The suggestion that a grad student may want to write a paper on our freakish family to be published in a medical journal.

We’re weird.

The science cannot explain the CF abnormalities in our family.

The only thing ‘new’ we learned was the specific genetic defects on Angel & Brandon’s CFTR gene. We have names for their CF.

But no more answers.

And so we soldier on.

With CF diagnoses that have no solid genetic confirmations.

With treatments for a disease that is “Atypical”.

We wait and see if one day our freak family will be put on parade in the hope of ‘helping’ the scientific community.

We wait and see how mild or active the weirdness of CF becomes for our kids.

We wait for nothing to change.

We wait for everything to change.

We wait.