When I had Denver – I was so spoiled by fate.
As a single mother, living with my parents it could have been more difficult – but Denver was always an easy kid.
Those milestone ages and events? He met the deadlines perfectly.
The ages used for sizes on clothes? Met those perfectly too. Moved into 6-9 month clothes at 6 months. Until he grew into size 7’s, that was the norm.
Everything for him was met at the perfect age. He was well behaved and polite – and still is to everyone but his ‘stupid parents’ (he is a teenager, after all. We are the enemy now). He’s a good kid.
I never really had to worry.
The only time I worried & panicked – Mom instinct had kicked in. He went on a camping trip for Scouts and I knew before he left something was going to happen – and it did. That’s when he broke his wrist. Call it a premonition, call it instinct, but I did panic (once the phone call came) until he made it safely home.
That was all before the light bulb went off and his chronic pneumonia finally hit me hard enough to test him for CF.
Now he has the diagnosis but the unusual nature of his diagnosis (and his sister’s) they are both listed as “atypical” CF.
The thing that worries me, is that I’m sitting here listening to wheezing, he’s struggling to breathe, but despite a nurses first instincts, we aren’t going to the ER. The doctor dismissed that idea. We’re being made to wait to go in until tomorrow. If his condition worsens we’re to go to the ER, otherwise we sit here for over 24 hours past when he woke up because he struggled to breathe.
I’m hoping that it’s because he has no fever. That it’s a logical explanation.
But I can’t help feeling like maybe the atypical nature leaves them to react less.
I’m sure I’m just being over-protective and paranoid because I’m so very worried.
Right?
I would worry too. Just wondering… what would happen if you went ahead and took him to the ER. Would you be turned away, would it not be covered by insurance because it was against doc’s advice. If he’s having trouble breathing, it would be hard for me not to seek medical treatment. I know that sometimes you do have to take a ‘wait and see’ approach, but it’s so hard to watch your kid in distress.
If I made the judgment call to take him to the ER they wouldn’t turn him away. I’m not thrilled with his level of wheezing, but I’m waiting until the husband gets home to make a final decision on what to do. There’s still no fever, but I’m worried none-the-less. Erik is really good at talking me down if I’m over-reacting (we balance each other out pretty good. I freak out, he’s chill…he freaks out, i’m chill). So the hubs is my judgment call at this point.