When Kennedy was diagnosed with CF we were assured that we were likely to see more trouble from her myriad of other issues than we would for CF. With the exception of one hospital stay two years ago, that’s been mostly true.

When Denver got his diagnosis at the age of 13, we knew his situation would be different.  Already he had chronic lung issues (pneumonia, bronchitis, etc).

Still, given the unique nature of both his and K’s CF…and the fact that I have a document stating that genetics can not confirm the diagnosis in either child – therefore making them “atypical” CF cases…

We still never realized how fast it would happen.

We didn’t realize how soon he’d end up in the hospital.

How quickly one hospital stay could change his day to day existence.

Or the perceptions of those around him.

How he would go from being “Oh, I don’t see how they could diagnose him with that” to becoming, “Is it safe for him do this? What about his illness?  We need his doctors information to let him do…”

In heartbeat.

In a cough.

In a moment’s time he went from one life to another.

Change happens fast for everyone.

This lightning speed attack of time & reality threw us all for a loop.

We’re all still adjusting.

It takes time.

Let’s just hope time gives us a little breather to catch up before we get blind-sided with another dose of reality.