Yesterday I told you about Angel and where we were with her.
Today it’s Brandon’s turn. He also had an appointment yesterday. One meant to look further into his abnormal test results. His initial appointment with the pulmonologist.
He was examined, lungs sounded clear.
The pulmonologist said that there have been studies that have been coming out that are showing that sometimes carriers of the CF gene can have low abnormal readings and just have more sinus symptoms, etc.
It was decided that instead of a sweat test, we would run full genotypes on both of the kids. To determine what genetic abnormalities brought on these strains. While Angel was being admitted, Brandon was sent for blood work and x-rays.
We felt satisfied with the explanation. Hopeful.
But no official results for a month.
Then, once things were settling down in our insane day…I got a phone call. The Fellow that had assisted our pulm said that he’d forgotten to call earlier.
It was about Brandon’s x-rays.
“The x-rays are abnormal. They appear to be CF in nature – but this is not enough to definitively call it yet. We still have to wait on the genotype results – which will be in January.”
So we still don’t know. We’re still waiting.
It might not be.
But it very well could be.
Another month of waiting.
My life has been cut up into months. Never ending. One month more.
One month.
oh sh*t.
I am so sorry, praying for the desired results, although I know that will never be enough.
Again, will hug and love on you tomorrow. seriously.
xoxox,
emily
@designHer Momma,
Thank you Emily. I hate the waiting so much…and it’s been a crazy couple of months on top of it all.
I’m very much looking forward to seeing you today! It’ll be a definite bright spot in my day 🙂
Saray
That medical waiting is awful.
We seemed to be wired to want answers, but answers….a double edged sword….
@inthefastlane,
Exactly. It’s a crazy thing. I’m one that prefers to know rather than not know so that I can cope…on the other hand, knowing isn’t all it’s cracked up to be as I’ve seen with Angel.
That waiting is nerve-wreaking. I hope you get some good news and soon.