The “funny” thing about K’s CF.

If she hadn’t developed a cough last year…we’d still be in the dark. Her lung functions are great (currently), she has some nasty BM’s…but not on an overly consistent basis (Not every BM is nasty)…She has FTT…but that could be passed off as either genetics or her hypotonia/inability to chew.

And even funnier? Last years cough never became ‘pneumonia’…it seemed more like some minor baby asthma to the pulm. A little bit of wheezing…but no rattling in her lungs…nothing like that.

A bronchoscope and seven sweat tests later…I’m now terrified for the cold and flu season to arrive. DH and I sit on eggshells worrying over our first real experience of her being SICK with CF.

Looking back, she got “sick” a few times last year…but it was always minor fever with a rash. Dr’s always dismissed it. Now each little favor has such a bigger impact…and it shouldn’t have to be that way…but it is.

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