Autism Awareness Day…

Apr 2, 2010 | All About Molly, Autism

myautismToday is “Autism Awareness Day.” 

For some reason as I heard the words in my head this morning I immediately became amused.  I understand that it’s about spreading awareness of autism, but I could only laugh and think But I’m aware of it EVERY day.

This is our face of autism.  Those gorgeous ice blue eyes.  The smile that has found its way to her face somehow. The personality that is starting to grow.

Most would call us blessed, and we agree.  Riley’s form of autism is mild enough that she will likely lead a “normal” life. A job, a family, all that a parent imagines for their child. That doesn’t mean she won’t struggle. That every day one quirk or another won’t rear its head to impede what would normally be an easy step into a careful shuffle of feet.

The little reminders that pop up.

The way she organizes her M&M’s by colors in a snakelike form before eating.
The way she delicately nibbles, trying not to let the grease or crumbs of food touch her lips or outside of her mouth.
The way we cannot break our established program or routine without a meltdown.
The way her hugs are strong but brief, no linger touches or snuggles.
The way you see her mind processing and learning everything she cannot express verbally.

Leaps and bounds of progress have shaped our winter, a sparkling personality is emerging from behind the walls.  With those she trusts she is bubbling and bright, even bossy…but the meltdowns still linger.

We are blessed. 

All parents are blessed. 

I hope today your awareness expands, but shouldn’t it every day?

Sarah

4 Comments

  1. joanna

    She’s beautiful!

    Reply
  2. Sarah

    Thanks, Joanna!! We think so too 😀 We’re very proud of our Riley…and I do love showing her off 😉

    Reply
  3. Rachael

    First off, she is beautiful! Secondly, you are right. And she is awfully blessed to have parents like you, but like you said, what a blessing to have someone to teach you so much.

    Reply
  4. Amanda (Garibay Soup)

    She absolutely is beautiful! My son too has such a mild form that he too will more than likely live a very normal life. I’m interested to see what little quirks continue, which new ones arrive, and how he deals with it. He has his own world he goes into, and lucky for us can be snapped right out of it. He likes to run back and forth, back and forth, and while it drives me crazy at times – I know he can’t help it. He’s extremely picky and it’s not because of pickiness, it’s because of textures, and smells, and tastes. If it’s too much ~ forget it ~ he’s not trying it.

    But he’s my shining star and I wouldn’t want him any other way.
    .-= Amanda (Garibay Soup)´s last blog ..Ultimate Blog Party 2010!!! =-.

    Reply

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