She Looks Fine to Me…

*Otherwise titled “The post in which I piss people off.”

blessing6From the time our troubles started, from the time we first realized there was just something ‘off’ about Riley.  From the day We realized Angel’s torticollis was more than just a lazy neck and a heavy head.  From the day we realized Angel’s cough was going for a month and showed no signs of letting up. From the first time Angel intentionally injured herself. From the first toys Riley lined up.  Every day, every night, every in between we are aware.  We notice when Angel runs out of steam before she’s played for ten minutes.  We notice when Riley is starting to retreat into her shell. When we’re in danger of a meltdown of epic proportions.  In danger of a night of a screaming, pouting, angry Riley.

We notice it all.

We see it in the every day.

We see it in the little things.

Every action, every reaction.

It’s a part of our lives.  It is our every day.

blessing5Then you come along and say “But she looks just fine to me.”  Or “She doesn’t seem autistic.”  And of course the “She doesn’t act sick.”

I know you mean well.  Really, I do.

But I hate it when you say that.

It’s like you’re belittling our every day.

The hours at doctors and specialists.  The hours calming and refocusing an over-stimulated child (longest meltdown stands at 36 hours).  The hours a day hooked up to machines to live every day.  The way I lay awake at night listening to labored breathing. Check temperatures every time we feel a little warm.

I know you don’t mean it this way.  I know you just mean to say that despite their troubles they look healthy and happy.  That unlike other children with special needs it’s not a visible/noticeable difference.

But I hate it.

Just say they’re beautiful.  Say they have a great smile. They look like they’re having a blast.

Don’t contradict what we KNOW.  Riley does have autism (no matter how mild). Angel does have CF, and right now she is sick (and we spend every day wondering just how badly it’s holding on).

It is our every day.

We try to live life beyond our labels – and we only succeed by accepting them and integrating what they mean into our lives.

*~*

*This post is a re-post from a couple of years ago. It’s still very relevant to us today.

Top Ten Tuesday – Katya Armock Talks Music

Katya Armock has stopped by today to talk about the top ten songs she likes to listen to while writing – and how they tie into her novel, [amazon_link id=”B00FY3FN1O” target=”_blank” container=”” container_class=”” ]To Growl or Groan[/amazon_link].
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psycho

Here are ten songs that I like to listen to when I write. They have some relation to my current novel To Growl or to Groan.

  1. [amazon_link id=”B00150U8DS” target=”_blank” container=”” container_class=”” ]Mr. Self Destruct[/amazon_link] by Nine Inch Nails: Chloe feels like she is losing control of her psychic ability, and this song could be from the point of view of her ability when Chloe is viewing it as a threat.
  2. [amazon_link id=”B0017QJN8G” target=”_blank” container=”” container_class=”” ]Sour Cherry[/amazon_link] by The Kills: Chloe and Jorge’s relationship gets tested in this book, not necessarily in the way this song implies, but I like the song’s vibe.
  3. [amazon_link id=”B000W18LPI” target=”_blank” container=”” container_class=”” ]Right in Time[/amazon_link] by Lucinda Williams: This is such a great love/sex song.
  4. [amazon_link id=”B000WIPZ28″ target=”_blank” container=”” container_class=”” ]Metal Heart[/amazon_link] by Garbage: Chloe has to face a lot of her inner demons in this book. A line from this song sums up her feelings in many ways: “I want to understand so I can forgive and be willing to love.”
  5. [amazon_link id=”B000004AT7″ target=”_blank” container=”” container_class=”” ]Most Beautiful[/amazon_link] by Frente: “The most beautiful thing is when I hear your heartbeat.” The Happily Ever After moment in a nutshell.
  6. [amazon_link id=”B000UCEJDM” target=”_blank” container=”” container_class=”” ]And Darling[/amazon_link] by Teagan and Sarah: A short song that always makes me think about the nature of relationships.
  7. [amazon_link id=”B00136O0AG” target=”_blank” container=”” container_class=”” ]Sweetest Decline[/amazon_link] by Beth Orton: Such a beautiful, haunting, hopeful song. “What’s the use in regrets? They’re just lesson we haven’t learned yet.” Kind of like the sun will come up tomorrow but a bit more my taste in music. J
  8. [amazon_link id=”B000EHQ7L0″ target=”_blank” container=”” container_class=”” ]Turn Into[/amazon_link] by Yeah, Yeah, Yeahs: It’s so hard to open yourself up to someone.
  9. [amazon_link id=”B002B31B84″ target=”_blank” container=”” container_class=”” ]You Shook Me All Night Long[/amazon_link] by AC/DC: I don’t think I need to explain. This band is not known for its subtlety. 😉
  10. [amazon_link id=”B0092MKH82″ target=”_blank” container=”” container_class=”” ]Demons[/amazon_link] by Imagine Dragons: Just to prove I do listen to some contemporary music. J Plus, this is a song I listen to over and over.

*~*

ToGrowlOrToGroan_ByKatyaArmok-453x680| [amazon_link id=”B00FY3FN1O” target=”_blank” container=”” container_class=”” ]Amazon[/amazon_link] | BN | ARe | Amazon UK | Amazon CA |

Blurb:

Her gift could save a missing girl…or destroy her relationship forever.

After receiving a troubling Tarot reading, Chloe just knows something big and bad is about to happen. Her ability to communicate with animals and shape-shifters is going awry, and her growing psychic abilities are beginning to scare her. Despite her unease, she won’t let anything interrupt her trip to Scotland to spend the holidays with her shape-shifter boyfriend’s family. Jorge is everything she’s always wanted, and the fire between Chloe and the passionate panther-shifter burns hot. But meeting his family has her nerves in knots.

When Jorge’s sister goes missing, Chloe’s psychic abilities might be the only thing that can help them find her. But things don’t go as planned, and with confusing psychic visions clouding her judgment, Chloe makes a mistake and an animal is injured. And Chloe fears she might hurt Jorge as well… 

Excerpt:

“Which deck are you drawn to, Chloe?” The tarot reader lays out three decks before me and waves her hands over the decks. “Feel free to pick them up, look at the artwork.”

Her booth is toward the back of a new-age shop called The Abacus, not far from where I used to work. She wears jeans and a T-shirt that reads, “Tarot isn’t a matter of life or death. It’s more important than that.” I’d place her at about forty, wisps of gray intermingling in her near-black hair.

I look over the decks of cards. The first has Renaissance-type drawings. Boring. The second is purple and features whimsical faery creatures. It’s pretty and ethereal. The third is dark. On the back of each card, two serpents eating their own tails are entwined on a black background. I flip the deck, thumb through the cards. The pictures are raw and vivid; they suck me in.

“This one.” I hand the third deck back to her.

She nods. “Very good. What is your question? You don’t have to tell me if you don’t want.”

There is no reason for me not to tell her; she of all people should understand. “I want to know about my gift.”

There’s not an ounce of judgment or question in her eyes before she holds the cards to her chest for a moment and closes her eyes for a few deep breaths. I watch the rise and fall of her chest, trying to claim her calmness, but I remain fidgety and anxious.

She opens her eyes, looks at my hands tapping on the table. “It’s OK to be nervous, but there is nothing to fear. All is as it will be.”

Oh, platitudes. If I ever become a Zen master, hallelujah. In the meantime, I try to quell my inner cynic and smile at the card reader.

She laughs, as if she can read my mind. Perhaps she can. “I’m going to do a three-card reading for you. The first represents the past, the second the present, and the third the future.” She shuffles the deck, then lays it neatly on the table between us. “Cut the deck with your left hand.”

I do, and she lays out the first card. It’s The Devil, which can’t possibly be good. At least it’s my past card.

Her face is unhelpfully blank. “Tell me your impressions of this card. It can be the name, the artwork, whatever.”

I pick it up for a closer look. The drawing is in shades of purple. At the top, a face, featuring lazy yellow eyes and downturned lips, sprouts four horns. A web of string seems to be wound among the horns and crisscrosses to form a pentagram on the devil’s forehead. From the neck down, he appears to be submerged in water and wearing some sort of vest with intricately interlocking clasps. “It is a dark picture, but it almost appears as if the figure has an angelic halo. As though all is not lost.”

She tilts her head to the side, revealing a small black goddess tattoo under her ear. “That is interesting. The Devil represents the shadow side of things. It can be lies and illusion, but it can also remind us to focus on using our power for good—to make our fate.”

Well that certainly fits and is a whole lot better than my first impression that my past must be filled with evil. Until recently, I had repressed the little I knew of why my mother left my father and me when I was ten. Now I know she left to go back to her mother to get help. I am certain it had something to do with her having a gift, just as I can telepathically communicate with animals and shape-shifters. And that means that my gift was inherited. What I don’t know is how far back in the family tree the genes go or where these gifts come from. I’m not sure I want to know.

*~*

katyaI like books that are funny and fun to read (and hot!) but also make me think or look at the world in a new way.

These days you’ll find me writing, pet sitting, juggling a number of freelance gigs, and reigning as my home’s domestic goddess. I live in the Midwestern U.S. with my husband, dog and cats. Alas, I have, as of yet, been unable to teach my husband how to purr.

Website: http://katyaarmock.com/

Facebook: http://www.facebook.com/katyaarmock

Twitter: http://www.twitter.com/KatyaArmock

 

Happy Meals for Happy Readers

HappyMealBooksOn almost any day of the week you can find the members of this family with their noses buried in a book.

Sure, the teen took a really, really long time to come around, but once he did he was unstoppable.

The girls read well above their comprehension level just to get words on the page.

So when I heard McDonald’s was replacing toys with books in their Happy Meals? I was pretty stoked. My girls will love getting books, and I love that McDonald’s is taking this step.

Included in our Happy Meals are these fun titles that involve teaching children about eating right when sometimes it’s not so easy to do:

HMBgiveaway

But they aren’t stopping there, which is even better.  Want to know why?

GiveaBook_LogoMcDonald’s of Central Indiana is leading a “Give a Book, Get a Book” campaign.

All around Indy, from November 1st through the 14th, at Ronald McDonald Houses, local libraries, and Indy Reads there will be Book Donation sites set up.

In exchange for a donation of a new (or gently used) children’s book, you’ll get a “Be Our Guest” card good for a free Happy Meal!

And to top it all off, participating libraries will host a “Happy Meal Day” filled with kid’s activities and McDonald’s Happy Meal books!!

Since 2011 McDonald’s has been finding new ways to take action and fulfill their “Commitments to Offer Improved Nutrition Choices”. Each of the stories in these unique, limited edition books, is a fun and nutritional message that kids can understand.

Now onto the part I know you’ve been waiting for. My Giveaway!  One lucky winner will get a week’s worth of Happy Meal Coupons, a $10 Amazon Gift Card, and a copy of a Happy Meal Book!

To make it easier, I whipped up a rafflecopter this time.  Good luck!

 
a Rafflecopter giveaway

 

RMH-Stacked-Logo-Blk-Red

Tuesday Tales – Abrupt – Deep Fried Sweethearts

MikeyThe prompt this week is Sweet.

I’m finally back to Deep Fried Sweethearts, my wonderful little Valentine’s story.

This may be my last foray into Deep Fried Sweethearts…unless you absolutely throttle me for where I leave you.  Michaela has done a terrible wrong by Tag at a time when he needed her most…but her life experience has shattered her trust in her choice in men. After messing up so bad she goes to his place to make an apology and explain, she doesn’t believe he will forgive her, or that she deserves it… 

Michaela chewed on what was left of her thumbnail, staring down the street on her right. She’d been at the stop sign for almost ten minutes. Thankfully the snowfall last night meant the roads were still quiet.

After almost a week of nearly turning down the street, she was still trying to build up the courage to do it.  “Just turn the wheel and go.”

A week ago she’d turned her back on Owen, she’d not given him the benefit of the doubt like he’d asked. Everybody in her life had read her the riot act for it, even Eve, although she’d done so more gently than the rest.

Still, she didn’t know which part of her was the biggest fool.  The one that had turned her back on Owen, even though life experience taught her that her judgment in men couldn’t be trusted; or the part of her that wanted to believe in him more than anything.

“Just turn the wheel,” She whispered. “There’s a good chance he won’t even open the door anyway, so just turn the wheel and go.”

A car horn jolted her out of her inner struggle and she shrieked in surprise. With an apologetic and embarrassed wave out her back window, she turned down Owen’s street. The other car went the other direction, so she was able to drive slowly down the street.  Still she arrived at his duplex all too soon and parked her car across the street.

At this point she didn’t know where to begin, or even what she was feeling or thinking any longer. Ever since his abrupt, and very justified, resignation she’d been at a total loss. When he’d come into The Midway to turn in his keys she’d found herself unable to even speak.

She should’ve said she was sorry. Thrown herself at his feet and begged forgiveness.

But the familiar doubt, the safe wall of seclusion she’d built so long ago, those had crept back in and prevented it.  What if the drugs had been his?

How could she believe that about him?

She’d never thought it was possible with Gary either.

Maybe Owen would hear her out if she started with sorry. First step would be finding her voice, and not locking up like she had when he’d come in to quit.

Before she could quadruple guess herself yet again, she grabbed her keys and got out of the car. She trucked across the street and up the steps despite her nagging doubts and the nosy Mrs. Quinn’s curtains moving aside. With more force than she thought her trembling hands capable of, she pushed the doorbell.

Silence echoed back and she tapped her heels rapidly on the porch. “Please, Owen. Please, answer the door. Please, please, please.”

She chewed on her lip and glared toward Mrs. Quinn’s not-so-subtle peeping face. With a deep frown, she hit the doorbell again.

The door cracked open finally, but it wasn’t Owen on the other side. Myrtle herself fixed a scolding scowl on Michaela. It was enough to stop Michaela’s tapping heels, and lodge the thick lump of fear firmly in her gullet.

“Please.” Michaela cleared her throat when the word squeaked at an embarrassing pitch. She twisted her fingers together and bit her lip. “Can I see him?”

“Look, Missy.” Despite her lack of coat, Myrtle stepped onto the porch and pulled the door shut securely behind her. She urged Michaela toward the railing across from the door. “I know your reasons for what you did, and you got your demons.”

“He needs to know them, and I need to apologize.” Michaela twitched her nose against the tingling rise of renewed tears she’d thought were long dry. “I know.”

“Nobody knows your story but you. I know there’s been a heap of talk around these parts, but talk is just that.” Myrtle frowned. “But if you hurt my boy again…”

“I doubt he’ll even take me back. I just want to tell him…”

“Oh, sugar. You and he, you’re in for a mess of trouble if you keep up with all this denial.” Myrtle sighed, and patted Michaela’s hand. “He’s good and hurt, and he’s got every right to be. But I told him to try to talk to you. Was trying to get him to go today. I can’t guarantee he’ll talk to you, but you can try.”

“Thank you.” Michaela followed Myrtle to the door, and stepped into the warm house right behind the older woman. In the kitchen, Tag rose to his feet and scowled between Myrtle and Michaela.

“Tag, don’t give me that look. I got to get my old body into work and I don’t have any more time for your stubborn head. Now give me a kiss and then at least listen for five minutes.” Myrtle shrugged on her enormous coat and leaned her cheek to Tag.

Tag kept a dark eye on Michaeala, but leaned sideways and placed a half-assed kiss on his aunt’s cheek. As the woman ambled toward the back door and disappeared outside, he remained immobile and silent.

Once again Micheala could swear she felt every single word in her head tumble over each other until they curled into a snarled ball and shot right down into a lead ball in her gut. Doubt over the right course of action started to creep back up.

“Well? You’re down to four minutes.”

His voice startled her right out of her own misery and she met his hard gaze with wide eyes. Her mouth opened and closed impotently for what had to be another minute before she managed to find her voice. “I’m sorry.”

“Thanks. Doesn’t take my night in jail away, or erase my name out of the paper under arrests—”

“I hurt you. I embarrassed you. I can’t ever make it right and I don’t expect you to ever forgive me. I should have said something when you came to the shop, but I didn’t know what to say, or how I felt, I was so confused.”

“That makes two of us.” He turned his back on her and leaned on the counter. His shoulders twitched and he picked at the loose edge of the marbled laminate. “I only ever asked you for one thing—to give me the benefit of the doubt. You couldn’t do that, could you?”

“I told you I couldn’t. I told you I could only try. With my track record, I wasn’t sure what to think. You can’t begin to understand.”

“You wouldn’t even let me try. All that time I thought you were starting to open up, you weren’t. I was lying to myself.”

“No, you weren’t. It’s not your fault.”

“I’m a fool for thinking I could crack that shell.”

“No. You cracked it, but a crack takes time to widen. Time we didn’t have.” She closed her eyes and dropped her head. “Will you let me explain why—why I walked away, why I still struggle to believe you are a good guy even though I know—I know that I should?”

“So you still don’t believe I’m innocent? Then why are you here?”

“Because in my experience good guys just don’t exist!”

*~*
Hope you enjoyed it!  Click on the Tuesday Tales badge to see more excellent entries!!

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ZooBoo – Scavenger Hunt Sunday

We went to ZooBoo this week…and I used it for all my pictures. Some might be a stretch, but ya know. 😉

All taken w/ Canon Rebel XS.

1. Dress Up
This little guy decided to be the most unique and elusive creature in the universe – a unigazelle.
A uni-gazelle

This fancy-pants scoffed and said he was always dressed up.
Hello Fancy Pants

2.Candy
Pink like cotton candy

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I can’t be sure – but I don’t think he’s looking for candy.
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3. Pumpkin
YAY! Elephants smashing pumpkins!

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I really loved the way this pumpkin was decorated

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4. Spooky
I think…think…these were supposed to be spooky.

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Where this guy succeeded the way he skulked about and paced.
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5. Orange
A peek of orange in the upper pumpkin.
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Explanation not required.
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 Songography:

My Life Would Suck Without You by Kelly Clarkson:

Well, it stands to reason that my life would suck without them:
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 songography

You can find more pictures over at my flickr account.