by Sarah | Jul 1, 2011 | Photography
During this past week I took the kids out for a some photo-shooting. It’s been about 2 years since our last one and with the exception of the “too good for photos” teen issues and one little girl getting hit in the face w/ our truck hatch…I think we met with pretty good success. These are some of my absolute favorites.
[flickr id=”5888389141″ thumbnail=”medium” overlay=”true” size=”small” group=”” align=”none”] [flickr id=”5888954984″ thumbnail=”medium” overlay=”true” size=”small” group=”” align=”none”] [flickr id=”5888386073″ thumbnail=”medium” overlay=”true” size=”small” group=”” align=”none”] [flickr id=”5888953752″ thumbnail=”medium” overlay=”true” size=”small” group=”” align=”none”] [flickr id=”5888385257″ thumbnail=”medium” overlay=”true” size=”small” group=”” align=”none”] [flickr id=”5888952714″ thumbnail=”medium” overlay=”true” size=”small” group=”” align=”none”] [flickr id=”5888952266″ thumbnail=”medium” overlay=”true” size=”small” group=”” align=”none”] [flickr id=”5888951604″ thumbnail=”medium” overlay=”true” size=”small” group=”” align=”none”] [flickr id=”5888950530″ thumbnail=”medium” overlay=”true” size=”small” group=”” align=”none”] [flickr id=”5885702438″ thumbnail=”medium” overlay=”true” size=”small” group=”” align=”none”] [flickr id=”5885702740″ thumbnail=”medium” overlay=”true” size=”small” group=”” align=”none”] [flickr id=”5885134239″ thumbnail=”medium” overlay=”true” size=”small” group=”” align=”none”]
by Sarah | Jun 28, 2011 | All About Denver, All About Kennedy, Cystic Fibrosis, Special Needs
Today we met with the genetics counselor.
We left with nothing.
Nothing new.
The suggestion that a grad student may want to write a paper on our freakish family to be published in a medical journal.
We’re weird.
The science cannot explain the CF abnormalities in our family.
The only thing ‘new’ we learned was the specific genetic defects on Angel & Brandon’s CFTR gene. We have names for their CF.
But no more answers.
And so we soldier on.
With CF diagnoses that have no solid genetic confirmations.
With treatments for a disease that is “Atypical”.
We wait and see if one day our freak family will be put on parade in the hope of ‘helping’ the scientific community.
We wait and see how mild or active the weirdness of CF becomes for our kids.
We wait for nothing to change.
We wait for everything to change.
We wait.
by Sarah | Jun 26, 2011 | Photography, Weekly Winners
All taken w/ Canon Rebel XS or Canon Rebel XTi.
I failed to use my camera this week…so I thought I’d go back and find my favorites so far for 2011. Trying to keep the list small is my biggest challenge ;).
The courage to imagine otherwise is our greatest resource, adding color and suspense to all our life. ~Daniel J. Boorstin
Man finds nothing so intolerable as to be in a state of complete rest, without passions, without occupation, without diversion, without effort. Then he feels his nullity, loneliness, inadequacy, dependence, helplessness, emptiness. ~Blaise Pascal
We should consider every day lost on which we have not danced at least once. ~Friedrich Nietzsche
One day You will take my heart completely and make it more fiery than a dragon. Your eyelashes will write on my heart the poem that could never come from the pen of a poet. ~Jalal ad-Din Rumi
In one drop of water are found all the secrets of all the oceans. ~Kahlil Gibran
Strength does not come from physical capacity. It comes from an indomitable will. ~Mahatma Gandhi
Be thou the rainbow in the storms of life. The evening beam that smiles the clouds away, and tints tomorrow with prophetic ray. ~Lord Byron
But friendship is the breathing rose, with sweets in every fold. ~Oliver Wendell Holmes
There is something haunting in the light of the moon; it has all the dispassionateness of a disembodied soul, and something of its inconceivable mystery. ~Joseph Conrad
You can find more pictures over at my flickr account.
That’s all for this week. Head on over to Lotus‘ digs to see more!!
by Sarah | Jun 23, 2011 | All About Molly, Crap, Random
(Arachnophobes beware)
The other day Riley rushed up to me with big eyes.
Holding her hands a foot apart she informed me…
“There’s a spider THIS BIG in the bathroom!!”
“THAT big?” I asked, grinning.
She nodded seriously, still holding her hands that far apart, “THIS BIG!”
In truth it was about 5 inches from long leg point to long leg point, a big spider…but I just thought it was so cute that she thought it was THIS BIG.
The spider was not harmed, I left her alone where she was (hey, she kills bugs, which we have too many of). Whens he came down from her ceiling perch to disrupt my shower she still was not killed. I gingerly picked her up by one leg and carried her outside to release her into the wild. She has since returned and taken up residence in the corner of the kitchen. She is welcome, and unless absolutely necessary will not be harmed…
and she’s still THIS BIG.
by Sarah | Jun 21, 2011 | All About Kennedy, Special Needs
Angel was a mere two months old.
Adorable.
Small still – almost preemie-like.
I had just fed her, holding her until she fell asleep.
I set her in the car seat I let her nap in.
Set a blanket over the car seat to shield her from the bright light of my bedroom and settled back to read.
It wasn’t five minutes later.
There was a sound.
One I will never forget.
Choking. Wet. Gurgling.
The blanket was thrown aside and I saw my precious baby twisted and still, eyes wide. Not breathing. Not moving.
We were in the car and flying to the hospital within a minute – no small feat with three kids
That was the day I ran into the ER in tears screaming that my baby stopped breathing.
Never have I seen that ER team move that fast.
Never have I felt the terror of wondering what had happened, fearing the worst.
They feared a seizure and ran tests.
She was in the hospital for 48 hours.
In the end, my baby was okay. We never really knew what happened. Perhaps it was reflux, choking on her own spit up thanks to her dysphagia. No infection was found.
But I will never forget the sound. The sight. The ER visit. The terror.
It helps me remember how lucky I am that she’s here. That they all are.
