by Sarah | Jun 19, 2013 | All About Denver, All About Family, All About Kennedy, All About Me, All About Molly, All of Us, Autism, Blogging Life, Cystic Fibrosis, Hospital, Special Needs, Sponsored
With my first child, I never heard of cord blood banking. It was around, but I was young and trying to figure out how I was going to do this whole parenting thing, and it wasn’t a blip on my radar. With my girls, this childbirth thing was old hat, although the larger family freaked me out and I was worried about finances and our small home and all the little details. In both cases I heard of cord blood, I researched it (kind of), and dismissed it. After all, my kids wouldn’t ever be sick. Denver was healthy as a horse (I thought), and my other two children would be the same.
Hindsight.
Now that I have two kids with Cystic Fibrosis, a very young niece with cancer, and have a much broader view of the world thanks to blogging, I wish I’d made that choice.
Through cord blood banking, you can collect and preserve potentially lifesaving stem cells, and doing so could one day save the life of your child or a blood relative. You can bank even more stem cells by collecting them from 2 usable sources of stem cell-rich blood: the umbilical cord and the placenta. This service is called Placental and Cord Blood Banking, and it’s available only from LifebankUSA. Whether you choose Placental and Cord Blood Banking or Cord Blood Banking alone, there are many important reasons to choose LifebankUSA.
There’s only one opportunity to save your baby’s stem cells for the future…
As an expectant parent, your baby’s health means everything. Right now, he or she is protected in the womb and will soon enter the world. There is a lot to think about and prepare for, but an invaluable step you can take when your child is born is to preserve his/her stem-cell rich cord and placenta blood The ability of stem cells to save lives via cord blood banking has proven successful for replacing abnormal or diseased cells, and treating life-threatening blood disorders such as leukemia, lymphoma, and myeloma. In fact, since 1988 stem cell transplants have been used to treat some 80 diseases. No, Cystic Fibrosis isn’t on that list – but I imagine one day it will be.
I’m done having children, fate and biology means my body is no longer able to have them, but if I could, I’d bank the blood. I recommend it to those I know debating it. Sure, the odds of illness might be small – but then as I’ve learned, you just never know.
Today, LifeBankUSA is having a contest, and you can win a SpaFinder Gift Card worth $200. Just head over to Facebook to enter the contest. It’s super easy!! (All those links, and the top image on the page will take you to the contest!)
And seriously, consider cord banking. It’s worth it.
*~*
ABOUT LIFEBANKUSA
As the only company that offers cord blood, placenta blood and tissue banking — and the first to release placenta-derived stem cells for a successful transplant — New Jersey-based LifebankUSA is a technological leader that is pioneering key medical innovations in the field. Owned by the Celgene Corporation, a world-class biopharmaceutical company, LifebankUSA also operates a robust donation program and collects cells from anywhere in the US for use primarily in advancing medical research.
*~*
*Disclaimer: This post was sponsored by LifebankUSA. I was paid for this post, but all opinions are my own heartfelt truth. I never take my children’s health for granted, and you can’t pay me to lie about it.
by Sarah | Jun 13, 2013 | All About Denver, All About Family, All About Kennedy, Cystic Fibrosis, Special Needs
It starts early.
Actually, the night before in a way.
As the teen is put on a fast, and we all go to bed early.
Because we have to leave at 7AM to get to the hospital at 8AM.
So the teen can drink that sickeningly sweet glucose concoction.You know the one, the same one we drank when pregnant.
And then we wait.
For two hours.
For more blood to be drawn.
Then the girl gets her blood drawn – which holy hell it’s like she’s being murdered.
Then it’s onto x-rays.
And functions.
And then we meet…
THE TEAM.
The social worker who hasn’t got much to say, but comes in every year. Makes sure we aren’t being killed by medicine costs. That we have all the ‘help’ we need.
The nutritionist that always tells us the kids are too skinny and to fatten them up. She gives us orders for calorie/fat boosting nutritional supplements.
The nurse that takes cultures and histories and makes sure all is clear.
The research associate that clues us in to new research projects we can partake in if we chose.
We break for lunch, and return and wait.
As our hospital is a teaching hospital we then see the Fellow. Who talks to us, examines both kids and heads out.
Then the doctor. Who examines both kids, goes over x-rays and future plans.
This year we had a change from the patter as the teen is being prepared for his own care. His exam was held in his own room where she went over the (still surprising to me) aspects of CF and how it could affect him and his future. The things no teenager wants to talk about in front of their parent…I mean EW.
It’s a full day.
Long.
Exhausting.
It ends with us grumpy.
Ready to get the heck out of there.
And grateful for another year.
It’s called a “birthday visit”.
A celebration of an anniversary i’d rather forget.
Kennedy’s is June 11th.
Denver’s is April 29th.
We meet them in the middle.
But in both cases, I’d rather forget that day.
The day we “knew” for sure.
Not celebrate it with a painful, long, exhausting day.
Although if we have to ‘celebrate’ such a ‘birthday’.
What better way than in misery?
by Sarah | Apr 27, 2013 | All About Kennedy, Cystic Fibrosis, Failure to Thrive (FTT), GERD, Hypotonia, Special Needs, Tibial Torsion
So X-ray might not be original, but I don’t care.
Some days I wonder how it is that Kennedy doesn’t glow.
I know the exposure levels are ‘minimal’.
I remember the lectures.
I remember the exposure tags when I worked at the vet’s office years ago.
But Kennedy has had so many x-rays in her short 7 year life.
They started around the time she was a year old.
Some X-rays were because of her lungs, and her eventual diagnosis of CF.
Others were for her hypotonia and the possibility of one leg being shorter than the other.
Or her tibial torsion.
And let’s not forget the reflux…oh, and the dysphagia where she had painful swallowing (which we eventually learned was from her inability to chew properly)…which meant about 5 times drinking and eating barium-laced substances and eating in front of a fluoroscope.
She has spent more time in front of X-rays, CT-scans, fluoroscope’s in her 7 years than I have in my entire life.
I’m seriously surprised she doesn’t glow.
*~*~*
The A-Z Challenge has over 1900 participants, all blogging from A to Z this month. Check them out and see if you can’t find a few new favorites!!
by Sarah | Apr 16, 2013 | A to Z Challenge, All About Denver, All About Kennedy, All About Me, All About Molly, All of Us
He started it.
Growing up he had many cute saying, turns of phrases.
“I don’t like your shirt.” When he was mad (because he wasn’t allowed to say he didn’t like a person.)
“Fizzers” for feathers…because, of course.
But by far the favorite.
The one he no longer says, even if we do…
An expression of love.
More than “I love you.”
More than “I love you forever.”
No, he took it all the way.
“I love you forever and never be done.”
Never be done.
He doesn’t say it that way anymore.
Rolls his eyes if we say it.
But Molly says it now.
And I hope she keeps saying it for a long time.
Because we will never be done loving any of the three of them.
*~*~*
The A-Z Challenge has over 1900 participants, all blogging from A to Z this month. Check them out and see if you can’t find a few new favorites!!
by Sarah | Apr 8, 2013 | A to Z Challenge, All About Family, All About Home, All About Kennedy, All About Molly, All of Us
In a house of girls, many favorites pass through these halls.
Stuffed animals galore go from favorite, to well worn, to out the door.
One of the oldest and still most cherished are two identical animals.
So old, the glitter that once adorned them is worn off.
The fuzzies are no longer fuzzy.
The ‘hair’. is matted and ripped off, and what’s left is knotted.
But in this house, these animals aren’t called unicorns.
Oh no.
It’s the unigoat.
*~*~*The A-Z Challenge has over 1900 participants, all blogging from A to Z this month. Check them out and see if you can’t find a few new favorites!!
by Sarah | Mar 25, 2013 | All About Denver, All About Kennedy, Cystic Fibrosis, Special Needs
Cystic Fibrosis.
The word hit me like a ton of bricks the first time Dr. A used it to refer to Kennedy.
My only experience and knowledge of the word harkened back to the TV show “Touched by an Angel.” The special 100th espisode “Psalm 151” that had guest stars Wynonna Judd (as the mom) and Celine Dion (as herself).
An 11 year old boy with Cystic Fibrosis that knows he doesn’t have much time left. He has a ‘list’ of items to complete…the final one being “Go to heaven.”
In the episode we saw a young child with the disease. We saw examples of chest percussions being performed (done by hand, not vest).
We saw an 11 year old die.
With that as your only experience, and a doctor telling you, “Don’ research on the internet, the stories will terrify you, let me talk to you first”…you sort of get a little freaked out.
Okay, you get a lot freaked out.
Dr. A’s reassurances that the diagnosis doesn’t mean what it did as many as 10 years ago did little to help my nerves.
Only living it has eased my sense of panic.
Seeing my kids live normal lives.
Is the worry still there?
Do I have a little heart attack at every high fever? At every cough?
Yup.
But with two kids living with it, and living well…suddenly having a bucket list at 11 doesn’t seem like quite as much of a possibility.
You just may have to remind me of that next time we’re in the hospital.
Deal?
Now that I have two kids with Cystic Fibrosis, a very young niece with cancer, and have a much broader view of the world thanks to blogging, I wish I’d made that choice.
