by Sarah | Oct 1, 2010 | All About Learning, All About Molly, Autism, Cross Country
Earlier this week Archie got a call from the woman we’re working with in Special Services. She has recommended moving Riley to All-Day Kindergarten.
In essence she’s saying “There’s something going on, she does have issues – but we wont’ give you an IEP or diagnosis yet.”
The reasons were….
1) All-Day Kindergarten is for children that “need more attention.”
2) All-Day Kindergarten would give her more time in the day to evaluate her.
3) All-Day Kindergarten would give Riley more time to adjust to her day and settle in before it’s all over.
4) All-Day Kindergarten has a smaller class size – less chaos, more individualized attention.
All valid points. All reasons to go for it.
But then there’s…
1) All-Day Kindergarten lends toward more chances for Fire/Tornado drills (oh won’t that be fun).
2) All-Day Kindergarten means lunch. Riley can’t handle the chaos of snacktime in a classroom – you think she’s going to handle lunch in a crowded cafeteria?
3) She loses her comfort zones – her teacher and her best friend J.
4) All-Day Kindergarten means all day. Means behaving to the best of her ability all day. Means putting all that effort into being good at school – what unholy hell will we be unleashing upon ourselves by asking her to do this?
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Well, we’re taking that risk.
I’d be lying if I said the thought of All-Day Kindergarten didn’t scare me on a number of levels…
But the thought of them having more time to evaluate her and getting this all out of the way is what’s holding me together. I still am not confident in the school’s ability to get this done – but at this point it’s our only hope. With the changes in insurance, getting her evaluated at the hospital is totally not in our pocketbook’s reach.
(And yes, it totally pisses me off that because of sh*tty insurance we have to rely on the school for Molly’s evaluation and diagnosis…and no, the geneticists diagnosis is NOT enough for us to get the insurance assistance we need. I’ve tried it before. We need one from a psych…thus we are dealing with the school…but that’s a totally different post that I won’t write for many reasons.)
by Sarah | Sep 27, 2010 | All About Learning, All About Molly, Crap
But really, wouldn’t you make allowances for this face?
I met with Riley’s teacher last week. A pre-IEP/pre-parent-teacher-conference meeting. A “she’s beating the crap out of her sister, how is she behaving in school” type of meeting.
Her behavior scale is different than the other students – she has been granted more leeway.
But she hides under the desk. She doesn’t talk. The class has had their seats moved several times already this year – Riley has remained stationary. She plays alone. She shuts down if things don’t go perfectly. She has one friend.
One friend is better than none.
The other kids try, from what I’m told. Riley just isn’t sociable.
One of the biggest problems at the moment is that it’s mid-terms. The teacher is required to test every student the same. Riley does not respond to the testing the way it is. Without an IEP there isn’t a thing the teacher can do to accommodate her needs. We can’t get an IEP until the testing is done. Rock. Hardplace. Us. Suckville.
We are learning from our (vast) mistakes. But not fast enough to spare some pain.
The teacher is worried sick about what will happen during a fire/tornado drill.
I’m worried sick about how this all is affecting her. Affecting us. Our meeting with special services will not be until November. Our hands are tied until then.
I thought we were done with the “hurry up and wait”.
It will never end.
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*Apologizing for negative nature of post. Feeling negative/stressed. It’s carrying over.*
by Sarah | Sep 17, 2010 | All About Kennedy, All About Learning, All About Me, All About Molly, Crap, Random
On occasion the random bullet-filled post is fun. Guess what you get today? The virtual grab-bag of crap…I mean, the bullet-list…so much less defined than a bucket-list 😀
* Riley got sick this week. I called her school on Monday at 10:45AM. Told them her name, her teacher, that she was in PM kindergarten – and said she was sick & not coming in. 2 hours later the school called wondering where she was. SOOOO not working in their favor.
* On that note, I have a copy of a withdrawal letter for her drafted. It’s not set in stone, but we’re meeting w/ her teacher on Monday. Might be an ‘exit interview’ to get our ducks in a row. Informational “what is happening in class” and “this is what’s happening at home” type of meeting. Not sure which way the pendulum will swing after that.
*Our town had it’s street fair this past weekend. Somehow Angel managed to get a pingpong ball into a little fishbowl TWICE. So, “Pingu” and “Nemo” are the new pets around here (pictures to follow soon). If they survive the week I’m going to need to get them a real fish bowl. Right now they’re managing, but I don’t have any proper materials so the water is getting filthy fast. Changing it out daily is not on my list of good times.
* The new season of GLEE is this coming week! YAY. Fall shows make me happy. GLEE, ANTM, Bones and Big Bang Theory I’m anxious to see again (okay, ANTM is already on, YAY). I’ve started watching Hellcats (don’t judge)…and I’m really looking forward to No Ordinary Family, Sh*t my Dad Says, and Blue Bloods (hello Donnie Wahlberg *sigh* – and my NKOTB love goes on – again, don’t judge, you know you loved them too).
* Speaking of shows…oh, how disappointed I am in True Blood. Alan Ball really took the show WAY off course – and BORED THE CRAP out of me this season. When you fast forward through 3/4 of the finale because you don’t give a sh*t about any of the characters – you know it’s bad. Shame on you, Alan Ball. SHAME ON YOU.
* I’m knitting again.
* And (sort of) writing again…more like editing my book based on some feedback I got. Once again I have confirmation from all that have read that my first chapter is great – but I’m still not getting my foot in that door. Oh well, I have a partial out once again (slightly rewritten from what it was), and I’m waiting to send out more until another time. At this time of year I stop pressuring myself to write so much, because it doesn’t flow as easy for me and there’s too much going on.
* Because of JENNIFER, I’ve started watching LOST. Yes, I’m WAY behind the ball, but so is she…and she mentioned it being on Netflix instant-play (which I’d noticed too) and commented that because she was late in watching she had no one to watch with. So, now I’m just about through the first season (would be completely but illness sent me to bed EARLY)…and annoyed at how hooked I am. Simple curiosity has me glued to my screen.
* I have more reviews coming. This will not turn into a review site, but some offers look interesting and I’m taking them when I can. At least one will go on my other site because it’s for a book, but occasionally you’ll see them here too!
* Did you know that there is now LESS than 100 days until Christmas? At the time of this post there will be 98 days until Christmas. Hey, don’t shoot the messenger! It’s a simple fact. How much shopping do you have done? I have probably 1/3-1/2 done already.
* I’ll shut up now. More random posts in the future.
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It wasn’t intentional, but this fits into the theme, so I’m tying it to Friday Fragments:
by Sarah | Aug 31, 2010 | All About Learning, All About Molly, Autism, Crap, SID, Speech, Therapy
I was not going to write about this because it is a very hot-button issue in our house. But for that fact alone I have to post it. This blog is about us redefining perfect in our lives – and telling how we do it. No subject should be avoided, especially the ones that cut so deep to our heart that we fight about it within our house. Because this is one of those topics w/ opposing viewpoints (at least it started that way) – I’ve asked Archie to write a post as well. I’ll post it once he has written it.
Riley started school a little over three weeks ago.
She’s 5 years old.
She’s intelligent beyond belief. Possibly even brilliant.
Socially…emotionally…well, let’s just say she’s not near as ready.
I didn’t think she was ready. Not for a classroom full of crazy kids (not that they’re insane, they’re…well, for lack of a better term…they’re normal). Not to be expected to be that same normal.
I admit to a bit a bias. Our first attempt at school was not successful. It was developmental preschool, specifically for special needs. Riley lost learning. Her behavior at home became erratic and violent. She was withdrawn before Christmas.
Now she had to go to ‘normal’ every day kindergarten…with neurotypical kids.
I wanted her evaluated first.
School said no dice – she has to be in for 6 weeks so we can see how much is normal reaction/adjustment to being in school.
It went against what my gut said – but after much debate and discussion with Archie (who believed just as strongly that she had to go into school), Riley was enrolled. Literally the day before the first day of school she was enrolled & given a teacher whom we met that very night.
We ‘warned’ her teacher, explained how Molly was. How they wouldn’t evaluate her and just gave her a heads up on what she might expect.
The next day school began.
The roller coaster ride took off so fast I couldn’t catch my breath.
Excitement. Anger. Glee. Stress. Happiness. Stubborn refusal to attend. Joy off the bus. “I don’t want to go to school.” “I had much fun at school.” “I miss you Mom.” More stress. Increasingly erratic behavior at home.
Every day is a struggle to get her to school. She doesn’t want to go.
Then off the bus it’s happy and chatty.
Within an hour I’m fending off the hounds of hell. Trying to keep calm.
Suddenly Riley’s aversion to loud noises is back with a bang. At school the teacher has given her leave to put herself in time-out with her own personal basket of Sensory Diversionary toys when things get ‘too loud’ or ‘too crazy’ for her.
Then we get a letter from school, informing us that they are recommending Speech Therapy for her. That (surprise of surprises) she qualifies!
Well, DUH.
The more I thought about it, the more annoyed I got.
I could have told them that. If they’d evaluated her BEFORE school, all of that would be known. I don’t NEED her to be forced into ‘normal’ behavior for six weeks to tell you how she’ll react and what she needs. Don’t make me wait (at least) 6 weeks to get her what she needs. To make her teacher fumble around for (at least) 6 weeks to try to figure it out. Don’t make an innocent child suffer for 6 weeks for something I could tell you NOW. TODAY.
It’s all rotten.
And I still hate it. My gut still tells me to get her the hell out of Dodge until she’s ready.
Before my eyes she’s unraveling again. The balance we achieved has been thrown off. I don’t know if we’ll ever find it again…whether she stays in or gets out…the balance has been shifted forever.
We’re still in the middle of this process. Decisions are being made and changed, and we’re trying to find even ground again.
If there is such a thing anymore.
by Sarah | May 6, 2010 | All About Learning
Two and two are four, four and four are eight, eight and eight are sixteen, sixteen and sixteen are thirty-two…
Yesterday the girls and I found a friendly little visitor on our driveway. So we kept him for a while before releasing him back into the wild. May I introduce “Wormy”:
He was great to have around. The girls adored him and still ask about him this morning!!
Of course that just means I have the song in my head…
Inchworm, inchworm, measuring the marigolds. You and your arithmetic you’ll probably go far. Inchworm, inchworm, measuring the marigold. Seems to me you’d stop and see how beautiful they are.
(P.S. I love this time of year. I’m coming out of my funk, writing tons, and playing w/my girls. Of course, my house continues to suffer, more so since we like to get OUT!!)
(P.P.S. All pictures taken w/ Canon Rebel XTi. SOC.)
by Sarah | Feb 3, 2009 | All About Learning
The process has begun. The discussions are proceeding as expected.
The effects on our family have already begun.
Homeschooling.
When Brandon was very young I heard of homeschooling and was so intrigued by the idea. At the time I was a single mother and never imagined it was possible.Â
Archie and I married shortly before Brandon started elementary school and I was working full-time. Homeschooling seemed still something that wasn’t possible. We needed the two incomes, we thought…and so it was only mentioned in passing by me.Â
There was also the fact that I have little good self-discipline. So often in the past I’ve not followed through on things. Even Archie said to me just a few weeks ago that he didn’t think I had the discipline and I agreed with him whole-heartedly.
Then I got the thought under my skin. I’ve been researching…I joined a state-wide homeschooling group. I made the decision based on situations to pull Riley out – and because she’d be ticked if Angel kept going, decided to pull Angel out as well.
The wheels are in motion for those two – and we are in discussions of pulling out Brandon as well. Those discussions are more intense, with more variables affecting our feelings and imaginings of the outcome.
But just in that time, during a week full of snow days, a change has come over our family. We are spending more time together. We are getting along better. Brandon is talking to us a little more. Riley is not beating up Angel as much, and her mood is vastly improved.Â
It’s still scary and sometimes overwhelming to think about. But I’ve made some choices about what we’ll do about curriculum, and found some great field trip places and ideas that cater directly to homeschoolers.
Riley’s last day of preschool will be Friday. Angel’s will be next Thursday. No matter what our choice, Brandon will finish out the school year.
Wish us luck as we figure out this new aspect of our lives…it’s going to be exciting, scary, fulfilling and overwhelming…a learning process for us all.