by Sarah | May 29, 2011 | Photography, Weekly Winners
All taken w/ Canon Rebel XS.
So ready for it to feel more like summer than spring. Much rain and horrendous storms this week. Hail, tornadoes, all sorts of craziness. Oh, and we had a long day at the hospital thrown in there for good measure.
Have I mentioned? OY.
Budding Toward Summer
Seedlings
My Dill seedlings taking hold and growing faster than any of my other seedlings…
Drops
Favorite Activity
Already Done
We were only waiting on the FIRST test of a very long day here. Angel was already VERY done.
You can find more pictures over at my flickr account.
That’s all for this week. Head on over to Lotus‘ digs to see more!!
by Sarah | May 28, 2011 | Crap, Random
The school bells rang for the last time on Thursday.
The race is this weekend.
Graduation parties spring up all around town.
Garage sales are starting to post their signs.
The Farmers Market is calling my name.
We are starting to have more warm(ish) days than cold(er than a polar bear’s toenails).
Brandon is B-O-R-E-D.
Yup. It’s summertime.
by Sarah | May 26, 2011 | All About Denver, All About Kennedy, Cystic Fibrosis, Special Needs
When a pulmonologist with over 20 years of experience declares your family’s case is “Weird”…you know you’ve got issues.
Yesterday Angel had her (4th) CF birthday visit. Brandon had his first CF visit ever.
There was the standard blood work, sputum cultures and x-rays done and then after lunch we got to meet with our pulmonologist. During the entire day the oddness of our family’s case was expounded upon.
* Both have defects on the CFTR gene. They both have slightly different defects. Angel’s leans more in the ‘standard’ CF direction…Brandon’s does not.
* The defect for both kids is one that has not been seen before.
* It is generally thought that their case of CF is “mild” as per the standard.
* Both of them had positive sweats, but in a low-positive area.
* In the strangest note of the day the pulm said that you could lay Angel’s x-ray on top of Brandon’s and the affected area in both of them would match up perfectly. They have almost identical lung damage in the almost exact same place.
We are moving forward with them. Their treatment plans are set. Brandon will have another test (a new CF diagnostic test).
We will meet with the genetic counselor still – the appointment is a month out. It was suggested that because of the oddness of our case we may all end up having our genetic tests run.
Until then we continue on. As we have been.
One foot in front of the other. One day at a time.
by Sarah | May 24, 2011 | Crap, Random
Washable, my ASS.
Shame on you, Crayola.
Now come wash my girls stained clothes.
by Sarah | May 22, 2011 | All About Denver, All About Kennedy, Cystic Fibrosis, Photography, Weekly Winners
All taken w/ Canon Rebel XS.
Today we walked in the Great Strides walk to raise money for the Cystic Fibrosis Foundation…All of my pictures today are from and in honor of the walk. We’re still accepting donations, so if you have even a spare dollar to help us find a cure, click my button over there. Even though CFF is getting closer to a cure every year, even today we had a moment of silence in honor of a 17 year old that had lost her battle with the disease just last week.
Purple for the Cure
Ready to Walk
Dropped
Twisting to Throw
Bracelets of Hope
Blow it Away
Walking for a Cure
Sunglasses Please
Sprinting Ahead
In my small little team, the two that were my CF babies decided to race on ahead of the rest of us…and literally ran right out of sight.
You can find more pictures over at my flickr account.
That’s all for this week. Head on over to Lotus‘ digs to see more!!
by Sarah | May 21, 2011 | All About Kennedy, All About Molly, Crap, Special Needs
We have no lingering baby toys.
They broke them all.
Toddler toys?
The same.
Toys that were mine as a child, passed on to Brandon, and then the girls…
Now in the local landfill…destroyed in little pieces.
Close playtime and giggling.
Always dissolving into tears and screaming.
Hand made curtains, lovingly sewn and hung.
Ripped off the wall, the rod broken.
The girls have always been more destructive.
Their room is a barren waste-land of decorating because they can’t be trusted w/ a dresser, much less finer details like lamps, pictures, or even hangers.
They are five and six now.
And as they sit here in extended time out for their latest run of torture, mayhem and destruction. We are left wondering.
When it is time to say “Enough is Enough”?
Is it sensory issues? Is it rotten kids? Bad parenting?
Did we go wrong somewhere?
