On top of my usual baby-filled posts…I’m going to follow the ‘cool girls’ and post my “How I met my hubby” story here. Well, the story of me pre-hubby will be involved…and I will warn you…I was STOO-PID, NEEDY, and PITIFUL. But, hey…I grew up…sort of.
Oh yeah…and involved in that story (and it’s aftermath) will be the story of how NONE of my children should be possible…and how/why some days I blame myself for K’s issues for several reason (no, not the CF…that’s a genetic roll of the dice).
Anyway, the story of poor, poor, pitiful me (and subsequently my poor DH) will start (barring any hospital runs) tomorrow!
Whenever my blog starts working again, here’s my update!!
Bad news – definite crackling in one of the lungs. Wheezing on both sides.
Good news – Not severe enough for admittance yet. Because of good history over the summer of good throat cultures and lung function, he’s going to trust the antibiotic for now.
How we proceed – Continue on as we have been. If there is ANY change in how well she breathes, she’s going to be admitted. Translation: If she wheezes harder, or has labored breathing (seeing ribs when she breathes) we’re to call immediately and get her in. For now we trust the meds…and cross our fingers!!
Right now while K is sick, this is my life. 3 times a day, 30 minutes a piece – plus 5-10 minutes on the nebulizer (I do not have that on video because I have to pin her down on my lap to do it properly) twice a day.
If you listen closely, you can hear her letting her voice vibrate with it (I know it’s tough over the sound of the machine).
And for an update on her being sick. The pulmonologist put her on antibiotics as a ‘precautionary’ measure. We started them this morning, but we started them too late – she spiked a fever tonight. She’s miserable…red nosed, red-eyes that are tearing, sneezing, coughing, and vomiting…it’s breaking my heart. Her first real illness since the diagnosis, and every cough just makes me tear up.
Yesterday I promised updates of another Molly accomplishment, and here it is…
Wednesday I took the girls into the bedroom where DH was watching a movie. They were playing on the bed, climbing all over him and me…just have a grand old time.
While playing, I often play ‘word games’ with the girls, trying to get them to repeat the sounds. K is always game, copying to the best of her abilities. So somehow that night we ended up saying “Up, Down.” I think K had said ‘happy’, and it sounded similar to up/down, so I went with it. Anyway, I start saying “Up, Down. Up, Down.” K is copying it…and suddenly I take note of Molly.
She’s standing up, and sitting down. Standing up, sitting down. She KNOWS what Up/Down means!!! Thinking it was a fluke, we moved on…and then started again…and she started doing it again! Up, down, up down…Then she started jumping to get us to say it faster!!!
We always suspected (pretty much knew) there was more knowledge in her head than she could express…to see it evidenced in action is HUGE!!! Big day!! We’re very happy 😀
For the first TT, we’re going to cover SID – Sensory Integration Dysfunction (also commonly called Sensory Processing Disorder).
Definition of SID: A neurological disorder causing difficulties with processing information from the five classic senses (vision, auditory, touch, olfaction, and taste), the sense of movement (vestibular system), and/or the positional sense (proprioception).
The layman’s definition: Difficulty processing sensory input.
SID can be a standalone disorder, or it can be symptomatic of other disorders (such as forms of PDD, Tourettes, or even dyslexia).
SID is usually diagnosed by an Occupational Therapist.
That I get scared, worried, and sick to my stomach over my girls. I’ll be honest to say that I’m not so worried over Molly (most days). She’s got her issues, but she’s growing and blossoming…and I think that she will be pretty high functioning. Yes, on screaming fit-throwing days, I’m more nervous…but on the average day I’m fine.
K is another story. Not only am I constantly paranoid about sickies and such…but her other issues worry me. The way she walks, eats, etc. Yesterday she choked again. I was right there, but she choked. Makes my stomach flop every time.
Today, though…just now. It’s naptime so I say, “Are we ready for night night?” K, in all of her happy glory says “Nigh nigh!!” and starts walked toward her bedroom. She has one of her (all-too frequent) missteps…but this time fails to catch herself. Crash to the hardwood floor, face first. Cue silent screaming…deep breath…LOUD screaming…high pitched shrieking. I check her lips, no blood…blood at the base of her tooth. Crap…has she shoved her teeth back into her gums? How out were they before? I know they were crooked, were they that crooked? Should I call the doctor? Should I just wait it out? SCREAMING continues…No more happy ‘nigh nigh’…SHRIEKING again…tears streaming down her snotty face…pained ‘how dare you let me fall’ expression on her face.
I’m counting down the days until the ortho appointment…COUNTING…
Oh, but on the upside…K is the ONLY baby I’ve ever known that could blow her nose. STarting at about a year old, she’s been blowing her nose every time you hold a tissue to it…nuts, huh? *G*
