Once again…not a shining start…

[flickr id=”6047528569″ thumbnail=”small” overlay=”true” size=”small” group=”” align=”left”]Tonight was meet the Kindergarten teacher night.  I was really excited. Tomorrow I’ll have all kids in school.  This was supposed to be a night of relief and excitement for us all.

It became a night of frustration and tears.

First, the school was ill-prepared for teachers (as I learned on Friday) and ended up having to hire two more…ON.FRIDAY. School starts….tomorrow.  Soooo, we got Angel’s teachers name when we walked up to her door tonight.

THEN, thanks to poor communication both AM & PM kindergarten parents showed up to what was supposed to be just the AM KG meeting…leaving the room insanely over crowded and confusing.

After the teacher’s (exceptionally short) schpeal about the day’s schedule…I had to wait over 30 minutes to meet her face to face…

And when I told her about Angel’s #CF…I got “Did you talk to the nurse…because she gives me a list of all the kids w/ special medical needs and Angel wasn’t on it.”

I literally had to stop myself and tell the teacher I couldn’t say anything else without getting nasty.

I called in APRIL.

THREE departments to ask what I had to do.

All I got was “nothing. Nothing. No, there’s nothing you need to do.”

And now this?

Once again I’m underwhelmed.

Annoyed.

Tired

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Tomorrow we have an appointment for CF Clinic.

I don’t want to go.

I don’t want to hear what she has decided for my kids this time.

After the ‘new’ and ‘definitive’ test.

After the genetics counselor.

After so much hell.

I’m tired.

Of doctors.

Of tests.

Of changing diagnoses.

After the last appointment (w/ genetics) I declared I was done. I never wanted to take any of them to a doctor again.

But I will.

I will find that strength again.

I will listen again.

And make sense of their decision.

And put trust in her because she is their doctor.

But I will still be tired.

 

Cabin Fever

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In winter it was the ice storm that froze everything inches deep.

That led into the spring so wet it rained almost every day and flooded out our yard, the park, and everything in between.

To now. Record making and breaking stretches of intense heat so bad you can’t sit outside without breaking a sweat.

A few average days would be nice.

Maybe the kids would stop killing each other.

Everyone would relax.

School starts in a week.

I feel like we’ve had no summer. No vacation.

Pent up in this house for so long.

Cabin fever has been building incessantly.

Pouting Randomness

[flickr id=”5959711952″ thumbnail=”medium” overlay=”true” size=”small” group=”” align=”left”]My BFF Jess and her brood have left the building.  On Tuesday they started the long drive home to Virginia, and my house was quiet. I didn’t post while they were here much, and I’ve spent the past two days recovering from their presence. It was a marvelous time and we’re hoping to make it an annual thing.  Sooo….while my brain is recovering you get random plot points of my life.

* BEST.Birthday.in.YEARS. For the past I don’t know how many years my birthday has sucked. This year was a new experience and joy.

* I got my tattoo!!  Full story coming later. In short – I was terrified of the pain. I didn’t hardly flinch. Planning 2, 3, & 4.

* I have a renewed appreciation for Cocksucker TV (as Jess called it…i.e. DEADWOOD).  I will always love this show and will always hate HBO for cancelling it.  But watching it with my BFF (okay, we only got through half) was so much fun.  I knew I’d get her addicted – and I did.

* Her oldest boy (we’ll call him Jack for privacy purposes) and mine were like two peas in a pod.  Instant re-friendship and camaraderie.

* There is another #IndyGeekGirls meeting this week. I still haven’t RSVP’d. I guess I should decide if I’m going or not. Since it’s Friday and today is Wednesday. Yup, I’m slow.

* Oh, just remember that my tattoo means I can cross another item off of my 45X45 list. YAY!!

* P.S. In case you didn’t know…that birthday was number 35.  Some days I don’t feel anywhere near it…other days I feel sooo much older.

* My wonderful hubby Archie was a marvelous champ this weekend.  Crowds and changes in routine can really affect him physically and mentally with anxiety and other issues.  This weekend?  He was marvelous.  He was great with the kids, and he and Jess got along just fine (I was worried, last time he met a good online friend things did not go well).  Love him – thank you honey!!!

* My parents got me a gift card to Hobby Lobby. I don’t know how I will manage to choose what to use it on. That store is dangerous.

* Our neighbor across the street passed away. This is the second time this has happened since we’ve lived here (same house, different circumstances).  Unfortunately this time it was someone we knew a little better – at least Brandon did.  While the gentleman was a bit on the cranky side – he had a soft spot for Brandon and was always really nice. He even helped him stay in a Union tent at our towns Civil War Heritage days and fixed it so he could fire off a cannon. Just a month ago.  Brandon is understandably upset.

* I’m ready for school to start. Looking forward to a few hours of quiet a day to get things done.  Just a month to go until it’s back to school for the kids – ALL of them!!

* It is HOT. Insanely hot. A/C running ALL the time kind of hot. This does not make me happy. Too hot to do anything but stay inside…and the kids have been on each others nerves for weeks already. Riley & Angel are at each others throats.

And I will stop now…more posts coming ASAP…

The Monster in the Bathroom

(Arachnophobes beware)

The other day Riley rushed up to me with big eyes.

Holding her hands a foot apart she informed me…

“There’s a spider THIS BIG in the bathroom!!”

“THAT big?” I asked, grinning.

She nodded seriously, still holding her hands that far apart, “THIS BIG!”

In truth it was about 5 inches from long leg point to long leg point, a big spider…but I just thought it was so cute that she thought it was THIS BIG.

The spider was not harmed, I left her alone where she was (hey, she kills bugs, which we have too many of).  Whens he came down from her ceiling perch to disrupt my shower she still was not killed.  I gingerly picked her up by one leg and carried her outside to release her into the wild. She has since returned and taken up residence in the corner of the kitchen.  She is welcome, and unless absolutely necessary will not be harmed…

and she’s still THIS BIG.

Drinking It In

We have a busy day today, and the lazy days of summer that have finally arrived have my brain saying “Uh….huh?” instead of coming up with deep blog posts. So those combined factors give me a blog post of random bullet points…

* So You Think You Can Dance has started!  While my husband cringes and cowers, I drink up every minute of this show…LOVE summer when it comes around!!

* Within two weeks time we went from insanely & unseasonably cold/rainy days to insanely HOT killer heat waves. To the point of not being able to go outside some days. What ever happened to spring?

* Today Brandon has some weird test for CF that apparently has become the new “Gold standard” test for the disease and could yet again change his diagnosis.  Can I say that that alone has me thinking I don’t want it done…I can’t tolerate any more flip flop on this…if they change his diagnosis AGAIN after all of this I’m just going to break down and cry.

* In exactly 5 weeks I will be having the best birthday ever.  My best bud, Jess, will be coming into town with her boys.  They’ll be staying for about 5 days right around my birthday. I’ll be going to get my tattoo (YAY)…and it will just be an amazingly fun weekend 😀

* I’ve been cleaning. Randomly. Thoroughly. It’s strange. I hate to jinx it.  It makes my husband very happy.

* In 10 weeks my kids will ALL be in school.  Angel will only be in school for a couple of hours a day…but…my kids will ALL be in school. There is something not right about that thought.

* On a related note – the third/final trimester sort of sucked for both of my school kids this year. Grades dropped, behavior dropped. Not sure what happened there but leaves me feeling BLEH.

* I don’t know if you somehow missed the hullabaloo over the Circle of Moms Top 25 Faith Blogs that was turned into a spiritual warfare (including death threats to one of the nominated blog owners) – but I’m proud and pleased to say that a Pagan blog has won…and one of my favorite Pagan bloggers at that. Congrats, Mrs B!!  You behaved admirably and held your head high through the chaos and ugliness thrown around.

And that’s it for today. I need to get back to my day…lots to do before we have to leave for the hospital for the newest test.