Terminology Tuesday

For the first TT, we’re going to cover SID – Sensory Integration Dysfunction (also commonly called Sensory Processing Disorder).

Definition of SID:
A neurological disorder causing difficulties with processing information from the five classic senses (vision, auditory, touch, olfaction, and taste), the sense of movement (vestibular system), and/or the positional sense (proprioception).

The layman’s definition: Difficulty processing sensory input.

SID can be a standalone disorder, or it can be symptomatic of other disorders (such as forms of PDD, Tourettes, or even dyslexia).

SID is usually diagnosed by an Occupational Therapist.

It’s Days Like This…

That I get scared, worried, and sick to my stomach over my girls. I’ll be honest to say that I’m not so worried over Molly (most days). She’s got her issues, but she’s growing and blossoming…and I think that she will be pretty high functioning. Yes, on screaming fit-throwing days, I’m more nervous…but on the average day I’m fine.

K is another story. Not only am I constantly paranoid about sickies and such…but her other issues worry me. The way she walks, eats, etc. Yesterday she choked again. I was right there, but she choked. Makes my stomach flop every time.

Today, though…just now. It’s naptime so I say, “Are we ready for night night?” K, in all of her happy glory says “Nigh nigh!!” and starts walked toward her bedroom. She has one of her (all-too frequent) missteps…but this time fails to catch herself. Crash to the hardwood floor, face first. Cue silent screaming…deep breath…LOUD screaming…high pitched shrieking. I check her lips, no blood…blood at the base of her tooth. Crap…has she shoved her teeth back into her gums? How out were they before? I know they were crooked, were they that crooked? Should I call the doctor? Should I just wait it out? SCREAMING continues…No more happy ‘nigh nigh’…SHRIEKING again…tears streaming down her snotty face…pained ‘how dare you let me fall’ expression on her face.

I’m counting down the days until the ortho appointment…COUNTING…

Oh, but on the upside…K is the ONLY baby I’ve ever known that could blow her nose. STarting at about a year old, she’s been blowing her nose every time you hold a tissue to it…nuts, huh? *G*

Our whole week – cancelled!

We have cancelled our entire week this week! This is what my week was supposed to look like (the blue indicates rescheduled, red indicates canceled):

Monday – M Preschool 12-3:30
Meet DH with K and have lunch
Tuesday – M Flu Shot 9:10AM
K Speech Therapy 1:00

Wednesday – M Preschool 12-3:30
Me Chiropractor 11:45
K Pulmonologist 2:30

Thursday – K Physical Therapy 12:30
K Speech Therapy 1:30
M Nutritionist 2:00

Friday – M Flu Shot 9:10AM (may still be rescheduled)

The only thing NOT cancelled due to illness was Molly’s preschool on Wednesday. I cancelled that because of the doctor’s appointments that I ended up cancelling. Good thing this was a mild week.

On tip toes…

Well, once again, I have to avoid my baby girl as much as possible. I have a TERRIBLE cold. Actually, Molly had it first. When she got up yesterday K had a TINY bit of one…and by last night I had a full blown painful cold. My throat is on fire, my head feels like it’s in jell-o…

K was supposed to have an appointment with the pulmonologist today…but me going into a CF clinic with a full blown cold, and Molly just getting over hers…NOT a good idea. When I said it to the nurse, she agreed but then instantly got on the “Kennedy isn’t sick, is she?” I said that she had a tiny bit of a cold…but not severe enough to cause panic yet. Her nose ran a little yesterday, but that was about it.

I gave Molly a bath yesterday because she has the tendency to “run and wipe” (i.e. Nose runs, she wipes it…into her hair). She was all clean and shiny and soft-haired…and by the time her nap was over…so was that idea. *sigh* I hope she gets over her cold soon so that she no longer is a booger-head.

Terminology Tuesday

Starting next Tuesday, I’m going to start a weekly snipped called ‘Terminology Tuesday’. I’ll be going in depth with definitions and terminology that special needs parents know. Different conditions (autism, CF, Fragile X, etc.), and therapies and equipment. If you have a topic you’d like to see covered, please let me know! Either respond to this post, or email me. I’ll be happy to take suggestions!!!

New Words of the weekend..

As I said yesterday, it’s leaps and bounds in this house. Molly had a bunch of new words this weekend…I’ll try to list them all.

1. Oh Shoot
2. Pretty
3. Sure
4. Dunno
5. Choo Choo

I’m sure there were more, but my brain has left me.

I’m not sure if it’s being in preschool, or she’s just having a ‘good period’…but I am just amazed by this little girl!! Overnight she’s become a totally new person!