Is it complaining if you have a valid reason for it?

Jan 14, 2009 | All About Kennedy, Hypotonia

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Today I have a valid reason for my complaining and picking at my Angel’s faults…so does that make it complaining and picking?  I’ll pretend it doesn’t (don’t tell me otherwise if it isn’t…I’m feeling so good about this *G*).

Tomorrow (Thursday) is Angel’s appointment with her new Orthopaedist at the children’s hospital where her pulm is located.  I’m excited, and anxious…worried that I’ll be let down again.  So, in preparation I’m making a list (of compaints) to present to the doctor.  You get the privilege of reading that list ;)  Lucky you, right?

So here’s my best compilation, hopefully I won’t forget anything…

  1. PT notes state her spatial awareness is still off – making her a possible danger to herself.
  2. PT notes also state she still prefers her right side for balance and strength.
  3. PT notes lastly state that she demonstrates bilateral hip weakness.
  4. At home we’ve noticed a visible difference in the length/size of her legs. It used to be minor and you really had to look and get her lying perfectly straight – now we can see it from across the room – and her feet are officially different sizes.
  5. Could this be causing scoliosis?  It’s genetic in the family, I’m worried that this can make it come on sooner and stronger for her.  My mother has a hump in her back hers is so severe (mine is more minor – thank goodness for dance).
  6. Changing her diaper has always been a nightmare, she hates having her legs/hips bent.
  7. Now pushing her knees to her chest causes complaint/full blown fit.  It appears like her hips make her uncomfortable.
  8. She is showing improvements, but is it compensating improvements or actual improvements?

I’m sure I’m forgetting something…I’ll update as I go…if I remember, or Archie reminds me of something.   Wish us luck tomorrow…we’re going to need it!  I was so disappointed in the last ortho, I’m afraid I’m a bit negatively biased ahead of time.

Sarah

1 Comment

  1. Barbara

    Wish I could think of some clever cliche answer to set a light tone. I sure would like to know what you learned at the ortho – is that what the locked door is about?

    The PT SHOULD be able to measure for a leg-length discrepancy AND SCREEN for scoliosis – but only an MD can diagnose the scoliosis with an xray. Perhaps your awesome pediatrician could do this?

    Reply

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