Back to ‘normal’…

Jan 12, 2011 | All About Kennedy, Cystic Fibrosis, Hospital

The hospital is only a memory.

The PICC line is gone, only a few scabs and red skin serve to remind us it was there.

A box of leftover saline syringes lingers in the kitchen.

Two more appointments in the coming month loom ahead.

But…

We are in ‘the clear’ as much as we can be.

Angel has resumed her regularly scheduled programming.

With a little bit more joy than before.

A few more crazy antics added to her repertoire.

The songs she makes up, I listen to the words now. She’s smart & clever & playful.

She responds to Dora, Diego, and Team Umizoomi with enthusiasm and joy.  She sucks in all knowledge she can like a sponge, seeping off her her sisters growing roster of knowledge.

Her love for her Daddy has expanded and grown since the hospital, with random expressive “I love you’s” popping out so much more often than before. While she still gets mad at him, she snuggles with him more.

The light that has always been our most joyful, smiling baby has grown brighter.

Or maybe we are just taking in that light with greater gratitude than before.

Appreciating and savoring it more deeply.

She is our light.

She always has been.

Nothing can extinguish her.

She’s indomitable.

She’s….our shining Angel.

Sarah

1 Comment

  1. Tara R.

    I’m so glad that life seems to be slowing down for you all a little. Hope it gives you a chance to relax and take a few deep breathes.

    Reply

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