by Sarah | Jul 3, 2015 | All About Denver, All About Erik, All About Family, All About Kennedy, All About Me, All About Molly, All of Us, Cystic Fibrosis, Disney, Make-A-Wish, Redefining Perfect, Special Needs
Our whole trip to Disney and Universal was a magical experience. There wasn’t one minute the whole week that we weren’t in awe, happier than ever, and closer than ever.
We have so many tales of the fabulous magic that occurred that week. From our first day, and first stop, at Ollivander’s wand shop. There Kennedy (and her sister) were both chosen by Ollivander himself and received wands selected just for them.
Kennedy wanted to ride every ride, and proved herself a little daredevil. We covered a lot of Universal that day, and rode everything in sight. Kennedy and her sister got pictures with all of their favorite superheros.
Of course, at the Magic Kingdom there was even more magic to be had. We stopped for every photo opportunity, and the manipulations the Disney photographers manage was stellar. We started our day at the Magic Kingdom with Space Mountain and the rest of the day was just as exciting.
There are so many moments we could talk about. So many ways the trip was made magical for us. There were so many things everyone did, from Make-A-Wish, to Give Kids the World, to Universal, and Disney, that have us still talking about our trip. Moments that brought all of us so much joy.
There is one story in our week of magic that stands out above the rest. One twenty minute span of time that will be held up as the most magical and endearing of them all.
When we went to Epcot we mistakenly didn’t expect to see any princesses. Call us naïve on the behavior of all the characters that roam all of the parks. Halfway through our day we stumbled upon the beautiful Aurora. While the girls were meeting with her, the photographer let us know about all the other princesses and when they’d show up.
The photographer clued us in on an unscheduled appearance of Belle in her town clothes right outside of France. We killed some time, got some delicious French pastries (that our teen is still asking for to this day), and headed toward where Belle was said to appear.
Before Belle arrived, her photographer did. The kind lady spoke to our girls for a while, and suggested that Kennedy ask a few questions of Belle. Namely: a) What is your favorite dessert? And b) What is your favorite book?
Moments later Belle emerged from behind a building.
The beautiful princess made a beeline for my princesses. In a gesture we hadn’t seen even through all the magic of our days, she took Kennedy by the hand and kept her close as they chatted. When Kennedy asked Belle’s favorite book, Belle leaned in and whispered in her ear.
To this day, we still don’t know the answer ourselves—that is a secret held just between Kennedy and her new favorite Disney princess.
After that, Belle continued holding Kennedy’s hand, and the stories became more animated. As she dove into Kennedy’s question about her favorite snack, Belle talked about a trick Mrs. Potts once played on Lumiere, all the while still holding Kennedy’s hand.
For a good solid twenty minutes (give or take five minutes), Belle spoke with my girls. Her attention never wavering, and her hugs nice and tight.
Somehow she even got our picture shy teenager in as their very own “Beast” for a few photographs.
We saw many princesses, and some comic book heroes, but no other moment in time has stood out as much as this one. A moment in time that lingers with us, and most importantly, with Kennedy.
by Sarah | Jul 2, 2015 | All About Denver, All About Erik, All About Family, All About Kennedy, All About Me, All About Molly, All of Us, Redefining Perfect
In our house the debate started years ago.
When Denver was young as we neared Christmas, Erik suggested getting him a Nintendo DS.
My first reaction? An immediate, resounding, “NO.”
After much debate, discussion, and a little cajoling, I gave in. The first child device entered our home.
From there it expanded. A Playstation, an iPod, a Wii, a tablet.
We thought our established rules were enough.
No accounts I did not know about.
NO accounts I did not know about.
I am to have access to ALL passwords, all accounts, all the time.
The devices did not stay in the bedroom.
I could take the devices and nose around at any time.
Did I mention – no accounts I didn’t know about?
I tried parental controls, but they were minimal on the early devices.
I tried communication (*side note: have you ever tried talking to a brick wall? It’s beyond fun, I promise. No, really. Come talk to my teen, you’ll love it. </end sarcasm>)
I tried prying and sneaking. Once it was known I was looking, sneak accounts were made. When I discovered the sneak accounts, more were made.
The past couple of years have been a nightmare that dissolved into all devices (including the school issued iPad) were taken away. The teen is now device-less save for a cell phone that is a flip phone–as dumb as they come.
So when the time came earlier this year to figure out a birthday present for the girls, you can imagine my immense trepidation when the husband yet again suggested, “What about tablets?”
Again the debate raged.
“Look what happened when we started down this road last time.”
“But we learned so much. We know now what not to do.”
“I know – but look what happened when we started down this road last time.”
“They won’t have internet access. We’ll have parental controls.”
“But…I won’t lose them to the devices like I did him.”
“We learned a lot.”
In the end, yes…we got tablets for the girls for their birthdays.
I made sure, despite the girls age of 9 & 10, that they had the best kid-friendly devices. I downloaded acceptable apps, I blocked internet access and everything BUT the acceptable apps (thanks to a kid-zone sort of app). So they can’t play with settings, or shop for more apps, they can’t see anything but the apps I chose for them.
They aren’t allowed to play on it EVERY day, and they aren’t allowed to play for them for hours on end. Plus, their time on the device is tracked (I can set limits, but have not yet).
I have learned from my mistakes, and while I’m still not entirely comfortable with the girls having devices, I’m much more comfortable with how we’re handling things this time.
Trust is earned, not freely given.
My noose might be tighter this time around, but experience taught me some painful lessons these past few years.
What about you? Do your kids have devices? What sort of restrictions do you place on them?
by Sarah | Feb 11, 2015 | All About Denver, All About Erik, All About Family, All About Kennedy, All About Me, All About Molly, All of Us, Cystic Fibrosis, Disney, Make-A-Wish, Redefining Perfect, Special Needs
I can’t predict how many posts this is going to take over the next few months, so I’m not even going to try. Instead, I’m just going to let our story unfold. Some posts will be on one moment in time, a brief ten or twenty moments in time that impacted us too deeply to be buried with the other notes of our story.
The story of how we ended up where we did was both long and then very short. Short of it is after not being approved two years ago we were contacted by Make-A-Wish in April, saying that Kennedy and Denver could both qualify now and to call them. After that it was a heartbeat later that the Wish volunteers were sitting in our living room getting the kids wishes.
Kennedy wished for Disney/Universal.
I don’t think any of us was prepared for the amazing that followed.
The first step toward our trip involved a party. We got to invite some friends and met at a local restaurant.
All three of the kids were treated to Disney delights. No child was left out in the preparations, and they all got gifts.
The biggest one of all was, of course, for Kennedy. That big giant package was an elaborate Princess Anna costume for Kennedy (pictures to come in another post).
We were able to sit and relax with friends, while the kids played with the bevy of toys they were given. The volunteers went over many things that my head couldn’t wrap around, and as I’ve said several times, we had no idea what we were in store for.
The party went on for several hours, and then we all went home. Kennedy was an ecstatic mess, and even though we still had a couple of weeks before we left, the impatience for the trip was mounting.
Of course, the kids were bouncing off the walls, and so was I, but I was also packing and planning and stressing (Oh but I didn’t need to…). Oh, and planning and packing and stressing a little more. Talking to other people I knew that had done Disney through Make-A-Wish who had glowing reports just like I do now after the fact.
And so…we prepared to go. Left the dog with my parents, my hard drive w/ a neighbor for protection, got the fridge emptied and the laundry done.
We were ready to take off!
(Part 2 soon!)
by Sarah | Jun 11, 2014 | All About Denver, All About Family, All About Me, All of Us, Crap, Random, Redefining Perfect, Special Needs, The Teenager
The past two weeks have been overwhelming.
It’s been one thing after another.
Denver got sick.
My dad’s Parkinson’s has reared its ugly head something fierce.
Denver’s teenage life blew up into all sorts of drama.
Husband had some big decisions to make at work, and the end result was the exact opposite that we’d been hoping for over the past few years.
I think my head might have exploded at one point.
I’ve been short tempered.
I’ve slept too much to cope.
I haven’t eaten enough.
I’ve only eaten crap.
I haven’t written a word.
But I’m still here.
I’m hoping this is the other side of hell week(s).
I’m putting one foot in front of the other.
Trying not to make a sound.
Trying to remember that positive side of me and find that silver lining.
Trying to not reawaken the dragon.
Because life doesn’t wait for you to cross the tight rope.
It keeps going on.
And so will I.
by Sarah | Jun 4, 2014 | All About Denver, All About Erik, All About Kennedy, All About Me, All About Molly, All of Us, Anger Issues, Autism, BiPolar with Hypomania, Crap, Cystic Fibrosis, Random, Redefining Perfect, Special Needs
There are minutes.
Hours.
Days.
When it’s all too much.
When everything hits at once and I just want to collapse.
Cry.
Crawl in a hole.
Run.
One child with autism – now on ADHD meds.
Two with CF.
One of those that’s currently ill – and facing possible hospitalization for the second time in a year.
One of those that also has behavioral issues that make me wonder just how to handle it all with her.
A dad with Parkinson’s…which is rapidly growing worse.
A mom I want to help, but am clueless as to how.
A brother I haven’t spoken to in 2 years, with whom I’m now making baby steps to repair that relationship.
Finances.
A new job I never wanted, but needed to get.
A surgery to “Fix” a problem…that didn’t work at all, and might have made it worse.
The list goes on.
And on.
And I forget how to breathe.
I forget which way is up.
But I move on.
I continue on every day as I have every day.
Eventually I remember how to breathe.
My brain remembers how to process.
I find solid ground again.
Today I’m upside down.
Tonight sleep won’t be easy.
But maybe tomorrow…
Tomorrow will be better.
by Sarah | Mar 20, 2014 | All About Denver, All of Us, Redefining Perfect, The Teenager
Gone are the days where the mail was full of bills and interesting items for me.
Paperless billing lessened our mailboxes load.
We don’t get many catalogs anymore.
But these days our mailbox is often full.
With items addressed not to us, but to Denver.
Letters, flyers.
College calling cards.
He’s in 10th grade now.
At school in his college and careers class he filled out something that gave his address and listed the career he was interested in.
Apparently schools don’t pay attention to the career listing, because he’s gotten many from schools that don’t do pre-med.
Still, he gets letter upon letter, flyer upon flyer.
I don’t remember ever getting so many.
My grades were just as good as his.
Are colleges that desperate these days?
Our whole trip to Disney and Universal was a magical experience. There wasn’t one minute the whole week that we weren’t in awe, happier than ever, and closer than ever.
There are so many moments we could talk about. So many ways the trip was made magical for us. There were so many things everyone did, from Make-A-Wish, to Give Kids the World, to Universal, and Disney, that have us still talking about our trip. Moments that brought all of us so much joy.
The beautiful princess made a beeline for my princesses. In a gesture we hadn’t seen even through all the magic of our days, she took Kennedy by the hand and kept her close as they chatted. When Kennedy asked Belle’s favorite book, Belle leaned in and whispered in her ear.
For a good solid twenty minutes (give or take five minutes), Belle spoke with my girls. Her attention never wavering, and her hugs nice and tight.
